Job summary
- Main area
- Children's Services and Neonates
- Grade
- Band 7
- Contract
- Permanent
- Hours
- Part time - 23 hours per week (Working 3- 4 days per week)
- Job ref
- 279-7146134-MAY25
- Employer
- 279 University Hospitals Sussex NHS Foundation Trust
- Employer type
- NHS
- Site
- Royal Alexandra Children's Hospital
- Town
- Brighton
- Salary
- £46,148 - £52,809 per annum pro rata
- Salary period
- Yearly
- Closing
- 09/06/2025 23:59
Employer heading

Paediatric Stoma Care Clinical Nurse Specialist
Band 7
About our Trust
At UHSussex we’re proud to be at the heart of the NHS. As one of the UK’s largest acute Trusts, we’re a leading example of the excellence, the ambition and the values that have embodied the NHS for over 70 years.
Our hard-working, talented and dedicated people work together towards a common goal – to always put our Patient First . In fact our mission is summed up by our ‘where better never stops’ motto and you will play a part in driving us forwards and in improving the lives of patients across Sussex.
At UHSussex, diversity is our strength, and we want you to feel included to help us always put the Patient First. Your uniqueness and experiences will be part of our creative and innovative community where everyone is encouraged to succeed. We have a range of Staff Networks to help break down barriers, and can offer a buddy to help new members settle in. We’re proud to be a Disability Confident Employer (Level 2) and a Veteran Aware Trust.
We treat our patients and staff with the same compassion and empathy we expect for ourselves. We’re here for them when they need us, and we go above and beyond to meet their needs. This can be seen in our Wellbeing Programme for staff which is extensive and designed to support you when you need it, including where possible, flexible working to support work life balance - because we know that to look after others we must first look after ourselves.
As a university trust and a leader in healthcare research, we value learning, teaching and training so that we can be the best that we can be. From the moment you start with us and throughout your career we will help you to grow and develop. We hope that in choosing UHSussex you are choosing a long and happy career where you will be able to see the difference you make and feel valued for all that you do.
We look forward to receiving your application and the start of your journey with UHSussex.
Job overview
A new opportunity has arisen at the Royal Alexandra Children's Hospital (RACH) in Brighton. We are looking to recruit an experienced and dynamic nurse into our Stoma Care Clinical Nurse Specialist post. In this role you will work with neonates, children and young people both in the hospital setting at Trevor Mann Baby Unit and RACH as well as in the wider community.
You will be a highly motivated and responsible nurse dedicated to providing high quality care with the ability to work under pressure with high levels of autonomy.
This position would be suitable for a registered nurse with proven experience working with children with stomas and with paediatric and or neonatal surgical and colorectal experience.
You will work closely with our Surgical team and wider MDT, providing expert care to babies, children and families/carers. You will be key to developing the service, utilising your organisational, teaching and management skills. Excellent communication skills are essential for this role.
Main duties of the job
The Paediatric Stoma Care Clinical Nurse Specialist will be based at Royal Alexandra Children’s Hospital, Brighton part of UHSussex NHS Foundation Trust. You will deliver a dedicated and expert stoma care service to children, young people, neonates and premature babies and their families or carers. You will work within our three hospitals and into our wider community area.
The role involves patient centred individualised care to those undergoing colorectal and urology surgery resulting in a stoma. You will also support those with fistulae in both secondary and primary care settings
The post holder will set up and run nurse led clinics and provide teaching to a wide range of healthcare professionals and will be able to lead and guide ward based and community nurses.
You will be looking to further develop your career as a Paediatric Stoma Care Nurse Specialist and will have a passion for the speciality with service development being a priority.
Working for our organisation
At UHSussex, diversity is our strength, and we want you to feel included to help us always put the Patient First. Your uniqueness and experiences will be part of our creative and innovative community where everyone is encouraged to succeed. We have a range of Staff Networks to help break down barriers, and can offer a buddy to help new members settle in. We’re proud to be a Disability Confident Employer (Level 2) and a Veteran Aware Trust.
We treat our patients and staff with the same compassion and empathy we expect for ourselves. We’re here for them when they need us, and we go above and beyond to meet their needs. This can be seen in our Wellbeing Programme for staff which is extensive and designed to support you when you need it, including where possible, flexible working to support work life balance - because we know that to look after others we must first look after ourselves.
As a university trust and a leader in healthcare research, we value learning, teaching and training so that we can be the best that we can be. From the moment you start with us and throughout your career we will help you to grow and develop. We hope that in choosing UHSussex you are choosing a long and happy career where you will be able to see the difference you make and feel valued for all that you do.
We look forward to receiving your application and the start of your journey with UHSussex.
Candidate Information Pack: https://www.uhsussex.nhs.uk/resources/candidate-information-pack/
Detailed job description and main responsibilities
· Ensure and promote excellent communication with all members of the MDT.
· Provide condition related information to children and their families or carers in clinic setting and at the bedside (pre-op and post-op), to include gaining informed consent, requiring empathy and reassurance.
· Set up and lead once-monthly patient groups within the community, providing information, support etc.
· Attend weekly clinical meetings as needed to foster collaborative MDT working.
· Ensure confidentiality and adherence to data protection legislation.
· Ensure that a full and accurate record of care is documented in a timely manner utilising appropriate nursing and medical systems as well as our bespoke stoma care database.
· Ensure stoma care database and diary are used effectively and accurately.
· Promote inclusiveness and treat people with kindness and compassion.
· Promote a team ethos and a positive working environment
· Ensure grievances/disputes/complaints are investigated thoroughly in a timely manner.
Service Delivery and Improvement
· Influence, plan, organise and implement programmes of individual, core and strategic paediatric stoma care service delivery in accordance with Trust priorities.
· Ensuring clinical practices have children, young people (CYP) and their families and carers at the centre of service considering the children and young people’s lifestyle, gender and cultural background.
· Make decisions on the day-to-day management of service provision independently within competence boundaries to ensure patients pathway is adhered to.
· Make autonomous decisions about patient care on a daily basis, considering best practice guidance, past medical history, along with recent and ongoing stoma requirements to make those decisions, some of which is likely to be conflicting.
· To facilitate delivery of a high-quality, cost-effective specialist service through monitoring and audit.
· Exploit opportunities to enhance children’s and their families/carers ongoing care through nurse led initiatives, audit and research.
· Organise and manage stoma care teaching and training as needed, usually on a weekly basis.
· Liaise with representatives of ostomy manufacturing companies as required.
· Lead in ordering and utilising paediatric stoma care supplies in a cost effective and waste reduction manner.
· Set up and support a Paediatric Stoma Care Patient and Family Support Group.
· To utilise information systems to aid regular audit of clinical role and activity.
· To monitor and evaluate stoma care appliances and equipment through involvement in clinical product evaluation.
· To participate in the Clinical Governance following Trust guidelines.
· To set, monitor and review paediatric stoma care standards of care.
· May participate in multi professional research and in national and local research projects and to seek publication of own work.
· Presenting research findings at conferences infrequently.
· To develop, provide and update appropriate patient/carer written information and advice for service users.
· To develop protocols for paediatric stoma care as required, for example the Management Protocol for High Output Ileostomy. Such protocols are to be utilised across the organisation, and on occasion across the ICB.
For detailed job description please review attached job description.
Person specification
Qualifications
Essential criteria
- Registered Nurse (RN/RNC/RSCN)
- Stoma care qualification
- Masters level qualification or equivalent experience
- Mentorship/998 or equivalent
Desirable criteria
- MSc Qualification
- Independent prescriber
Experience and skills
Essential criteria
- Experience of working with Paediatric stomas at B6 level
- Experience of caseload management
- Leadership experience
- Excellent communication skills
- IT Skills
- Teaching experience
Desirable criteria
- Paediatric Urology experience
- Experience of change management
- Experience in research/Audit
- Experience of Ace management, rectal irrigation/washout
Equality, Diversity, and Inclusion
Essential criteria
- Evidence of having championed diversity in previous roles (as appropriate to role).
- Evidence of having undertaken own development to improve understanding of equalities issues
Applicant requirements
You must have appropriate UK professional registration.
This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.
Documents to download
Further details / informal visits contact
- Name
- Lynne Mould
- Job title
- Matron for Children's Services
- Email address
- [email protected]
- Telephone number
- 01273 696955
- Additional information
Ext 62384
For further information or an informal visit please contact Lynne Mould.
Alternatively email Julie Booth, Directorate Lead Nurse for Children's Services: [email protected]
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